Category: Others
Cass’s Travel Items When Flying with Sickle Cell Disease
Hi I’m Cass. I live with sickle cell disease (hbSS) and love to travel domestically and internationally. Here is what I travel with to keep me healthy while I am flying. Medical equipment Request a High Altitude Simulation Test (HAST) from your doctor/pulmonologist to track your oxygen saturation based on altitude. This test…
Honoring Wunmi Bakare for Women’s History Month
Written by: Halimat Olaniyan Wunmi Bakare is a superstar! She was diagnosed with sickle cell disease at 18 months old but didn’t know until years later when she was nearly a teenager. This is because her parents choose not to tell her of her diagnosis. They didn’t want her to live her life believing she…
Honoring Artist, Author and Advocate, Hertz Nazaire for Black History Month
Written by: Halimat Olaniyan There are a few things the sickle cell community at large agrees upon: 1. Our pain is real so believe us. 2. We cannot adequately describe all the ways in which we hurt. 3. A picture is worth 1000 words. Hertz Nazaire, Haitian-born artist, sickle cell warrior, and advocate – took…
Public Figures Living with Sickle Cell Disease, Sickle Cell Trait, or Advocating for Sickle Cell
Whether living with sickle cell disease (SCD), having sickle cell trait (SCT) or being a devoted advocate despite not living with either, these public figures champion the cause alongside our global sickle cell community. Learn more about each one of these public figures that: (1) live with sickle cell disease, (2) live with sickle cell…
Living Well with Sickle Cell 30 Day Challenge
Start the new year and decade off right! This challenge features healthy eating, self-care, gratitude, and time in the sun ☀️ DAY 1 – Take a selfie – Tag 3 friends to participate in the ‘30 Day Living Well with Sickle Cell Challenge’ DAY 2 – Know your body – Make a list of your…
Curing My Sickle Cell Disease and Lupus
En español abajo A Mother’s Testimony on Her Daughter’s Bone Marrow Transplant Listen to the podcast episode here. My name is Scherika and my daughter Rhiannon was diagnosed with sickle cell disease at birth. Rhiannon developed lupus at the age of 5, was diagnosed with avascular necrosis of both of her hips at 9, and…
Sickle Cell and Depression
By David Woods They say those who suffer from chronic illnesses such as sickle cell may be at risk for depression. According to the Sickle Cell Information Center (scinfo.org), “The day to day stresses associated with the illness may contribute to feelings of helplessness, a feeling of not being in control, and create a vulnerability…
No Regrets– My Bone Marrow Transplant Journey
Interview with Teonna Woolford How did you first learn about this BMT study that could potentially cure your SCD? In 2010, I was 18 and had overcome so many obstacles and faced so many complications related to sickle cell. My hematologist told me he thought it was time or me to consider a bone marrow…
Advocating for My Daughter
By Georgene Glass I am a 35-year-old mother of two: a 16-year-old (AA) and a 3-year-old with sickle cell disease (SS). Before Gia, my youngest child, was born, I didn’t think much about SCD, and I felt bad for not displaying more concern when my niece was experiencing the exact same situation with her daughter.…
How I Decided to Participate in A Transplant Study to Cure My Sickle Cell Disease
Interview with Charles Hough on His Experience in Participating in an NIH Transplant Study for Sickle Cell Disease With huge risks, how did you reason with yourself in participating in the clinical study you enrolled in? It wasn’t easy. My biggest fear was death or degradation of my health. I knew the study was very…
Surviving My Stroke
At a young age, I had a stroke. I had just flown back home to South Florida after graduating as a medical assistant. As soon as I landed, I experienced a crisis and went to the hospital. At the hospital, I could feel a sensation in my chin coming and going. I immediately knew what…
HBCU Sickle Cell College Tour
The HBCU Sickle Cell College Tour is a series of events geared toward educating and raising awareness for sickle cell on HBCU campuses. This event is hosted by #BoldLipsForSickleCell and Sickle Cell 101. Stay tuned, these events are informative and empowering!
SCAY Awards 2018
Congratulations to Shamonica Wiggins, National Advocate; Rabi Maidunama, International Advocate; Dr. Cheedy Jaja, Healthcare Advocate; and Amy Mason, Community Advocate from Sickle Cell 101.
Sickle Cell 101 Award Recipient of Novartis STEP Program Grant
6th Annual SCAY AWARDS
Living Well with Sickle Cell 30 Day Challenge
Start the new year and decade off right! This challenge features healthy eating, self-care, gratitude, and time in the sun ☀️ DAY 1 – Take a selfie – Tag 3 friends to participate in the ‘30 Day Living Well with Sickle Cell Challenge’ DAY 2 – Know your body – Make a list of your…