Sickle cell education for all!
Sickle Cell 101 (SC101) specializes in sickle cell education for
individuals impacted by sickle cell disease and sickle cell trait globally.
FEATURED
Launch of Sickle Cell Studies
Moving sickle cell research forward.
Get involved in sickle cell research.
Sickle Cell Trait + RMC
Watch our live podcast event dedicated to sickle cell trait and Renal Medullary Carcinoma – a rare kidney cancer.
LEARN ABOUT SICKLE CELL
Learn about sickle cell, a group of genetic blood disorders characterized by misshapen blood cells, and how to manage this disorder.
Sicklepedia
A patient-friendly encyclopedia devoted to everything sickle cell-related.
Educational Resources
Your unlimited resource of guides and fact sheets to living with Sickle Cell
Podcast
Discussing sickle cell related topics with experts and covering hot and new topics within the space.
Sickle Cell Studies
A global patient-friendly clinical trial locator and research resource platform dedicated to moving sickle cell research forward.
Making a Decision As a Family
Jewel and Paula discuss shared decision making when it comes to participating in clinical studies for sickle cell. Find the right sickle cell study for you!
ASK AN EXPERT
Get your sickle cell-related questions answered with our team of experts.
OUR IMPACT
Sickle Cell 101 provides patient-friendly educational material to its users and followers globally. This map shows where our users are from.
PROGRAMS
SCAY Awards
Celebrating advocacy within the sickle cell community.
Educational Resources
Downloadable sickle cell fact sheets, booklets and more.
Ask the Experts
Evidence-based information for sickle cell related questions.
SC101 INTL
Sickle cell related materials to global patient advocacy orgs.
OUR 2021 PARTNERS & SPONSORS
TESTIMONIALS
BLOG
“Transplant day, it was mixed emotions, I was very tired very weak, but I was elated to see that bone marrow come in my room. The first thing I noticed was that my eyes were white. I had never seen my eyes white ever.” Spencer received a bone marrow transplant to treat sickle cell disease a couple of years ago…
I know it may be hard for people to believe, but I’ve never taken pain medication ever. In dealing with sickle cell, lifestyle matters and through it I believe that I can heal myself. Living with sickle cell disease (hb SS), I do fairly well healthwise. I’ve been vegan since third grade and wrote a book on nutrition and sickle…
My parents traveled a far distance to get a diagnosis for my swollen hands and the pain in my joints. We didn’t have access to a test to determine my genetic status. When they found out I had sickle cell disease at 6 months, they were devastated because they were told no cure was available in Kenya. The Kenyan government…
“Transplant day, it was mixed emotions, I was very tired very weak, but I was elated to see that bone marrow come in my room. The first thing I noticed was that my eyes were white. I had never seen my eyes white ever.” Spencer received a bone marrow transplant to treat sickle cell disease a couple of years ago…
