Blog & Press
3 Things Billy Garrett Jr does to have a better lifestyle with sickle cell
Read more: 3 Things Billy Garrett Jr does to have a better lifestyle with sickle cellWritten by Nnenna Kumenda Tip 1: Diet Now we know how hard it can be to change up your diet especially when you’re comfortable snacking and eating whatever you like, but sometimes change is good. We’re not saying have an athlete’s diet which is strict, we’re just saying what about putting that Pepsi down and…
Sunday James Shares His Experience with Receiving Blood Donations
Read more: Sunday James Shares His Experience with Receiving Blood DonationsWritten by: Nnenna Kumenda Sunday James talks about how important donating blood is for the sickle cell community and how blood transfusions have been saving his life since he was two years old. To those living with sickle cell disease we know how hard it is to find blood donors, especially with those who develop…
Ramon Reed Biography
Read more: Ramon Reed BiographyA native of Charlotte, North Carolina, Reed began acting at the age of five in community plays with Porch Productions, Inc and through his school and church. In 2015, his starring role as Donkey in a North Carolina Children’s Theater summer camp production of “Shrek Jr.” sparked a more serious desire and love for acting.…
Sickle Cell 101 and 23andMe Collaborate to Expand Sickle Cell Trait Awareness Campaign
Read more: Sickle Cell 101 and 23andMe Collaborate to Expand Sickle Cell Trait Awareness CampaignSickle Cell 101 and 23andMe Inc have joined forces to provide education and free resources to those unaware of their sickle cell trait status and are seeking to learn more. Launching to end Sickle Cell 101’s yearly Summer Sickle Cell Trait Awareness Campaign while continuing to celebrate Sickle Cell Awareness Month in September, the collaboration…
Sickle Cell Disease and Mental Health
Read more: Sickle Cell Disease and Mental HealthWritten by: Halimat Olaniyan Jemela Williams discusses how sickle cell affects her more than just physically. She discusses the impact of mental health as someone living with sickle cell disease, and how she manages its complications. To those living with sickle cell disease, we know that our pain is very real, despite whether the rest…
Being a Mom with Sickle Cell Disease
Read more: Being a Mom with Sickle Cell DiseaseWritten by: Halimat Olaniyan Versetta Brown discusses family planning, pregnancy, and parenting while living with sickle cell disease type SS. Versetta grew up terrified of the idea of having children because of what she knew about how pregnancy could negatively affect her sickle cell disease. Initially, it kept her from pursuing family planning any further.…
Cass’s Travel Items When Flying with Sickle Cell Disease
Read more: Cass’s Travel Items When Flying with Sickle Cell DiseaseHi I’m Cass. I live with sickle cell disease (hbSS) and love to travel domestically and internationally. Here is what I travel with to keep me healthy while I am flying. Medical equipment Request a High Altitude Simulation Test (HAST) from your doctor/pulmonologist to track your oxygen saturation based on altitude. This test…
Honoring Wunmi Bakare for Women’s History Month
Read more: Honoring Wunmi Bakare for Women’s History MonthWritten by: Halimat Olaniyan Wunmi Bakare is a superstar! She was diagnosed with sickle cell disease at 18 months old but didn’t know until years later when she was nearly a teenager. This is because her parents choose not to tell her of her diagnosis. They didn’t want her to live her life believing she…
Honoring Artist, Author and Advocate, Hertz Nazaire for Black History Month
Read more: Honoring Artist, Author and Advocate, Hertz Nazaire for Black History MonthWritten by: Halimat Olaniyan There are a few things the sickle cell community at large agrees upon: 1. Our pain is real so believe us. 2. We cannot adequately describe all the ways in which we hurt. 3. A picture is worth 1000 words. Hertz Nazaire, Haitian-born artist, sickle cell warrior, and advocate – took…
Public Figures Living with Sickle Cell Disease, Sickle Cell Trait, or Advocating for Sickle Cell
Read more: Public Figures Living with Sickle Cell Disease, Sickle Cell Trait, or Advocating for Sickle CellWhether living with sickle cell disease (SCD), having sickle cell trait (SCT) or being a devoted advocate despite not living with either, these public figures champion the cause alongside our global sickle cell community. Learn more about each one of these public figures that: (1) live with sickle cell disease, (2) live with sickle cell…
Chinonso Aladi: Fashion Designer and Owner of Nonso Aladi
Read more: Chinonso Aladi: Fashion Designer and Owner of Nonso AladiBy: Halimat Olaniyan Chinonso Alasi was born and raised in Lagos, Nigeria. She moved to America 10 years ago and pursued a degree in fashion and design. She started making custom pieces and then decided to take on her company full-time in 2020. She’s been running her own high fashion brand full-time for the past…
Juneteenth and World Sickle Cell Day: Celebrating and Addressing Well Known Disparities in One Community on the Same Day
Read more: Juneteenth and World Sickle Cell Day: Celebrating and Addressing Well Known Disparities in One Community on the Same DayBoth Juneteenth and World Sickle Cell Day are celebrated to acknowledge the longstanding history of disparities experienced within the same community, while finding concrete solutions to address these challenges. Today marks the one year anniversary of Juneteenth becoming a U.S. federal holiday. Coincidently there is another observance on June 19th that we find equally important…
Types of Nurses that Care for Sickle Cell Patients
Read more: Types of Nurses that Care for Sickle Cell PatientsContributor: Dr. Keith Quirolo Bedside nurses have more contact with patients in the hospital than any other provider. They spend their entire day physically, emotionally, and technically caring for from two to six patients depending on the degree of care needed. Nurses can be the primary nurse provider through an entire hospitalization or on successive…
Fertility and Reproductive Health In Sickle Cell Disease Feat. Teonna Woolford
Read more: Fertility and Reproductive Health In Sickle Cell Disease Feat. Teonna WoolfordBy: Halimat Olaniyan Watch interview of Teonna Woolford, Co-founder of SC RED >> This month we’re celebrating Women’s History Month by featuring sickle cell warrior, fierce advocate, and reproductive health trailblazer, Teonna Woolford. Teonna is also the Founder and Chief Executive Officer of SC RED, or the Sickle Cell Reproductive Health Education Directive. At…
Honoring Pat Corley, RN for Black History Month
Read more: Honoring Pat Corley, RN for Black History MonthThis Black History Month SC101 is celebrating leaders within the sickle cell community who have become vital voices for the progression of sickle cell. This leads us to adult sickle cell nurse advocate Pat L. Corley, RN. When you think of Pat Corley, think of the nurse you’d want by your bedside in hospital. That’s…
Honoring Jew-EL Darboné for Black History Month
Read more: Honoring Jew-EL Darboné for Black History MonthContributor: Halimat Olaniyan This Black History Month SC101 is celebrating trail blazers in sickle cell awareness. How better to celebrate our history than to honor the life of Jew-EL Darboné. You may know of her as an outstanding, unapologetic motivational speaker and co-founder of #BoldLipsforSickleCell, but she was so much more. Bold Lips for Sickle…
Donovan Peoples-Jones partners with Sickle Cell 101 to raise awareness for sickle cell with NFL’s My Cause My Cleats
Read more: Donovan Peoples-Jones partners with Sickle Cell 101 to raise awareness for sickle cell with NFL’s My Cause My CleatsHow the Cleveland Browns star wide receiver is making an impact on and off the field for sickle cell Written by Dr. Stephen Boateng, Director of Research and Partnerships, Sickle Cell 101 For Donovan Peoples-Jones (DPJ), he is no stranger to making an impact on the football field. The Cleveland Browns star wideout recorded…
Curing Sickle Cell Disease Through Bone Marrow Transplant
Read more: Curing Sickle Cell Disease Through Bone Marrow Transplant“Transplant day, it was mixed emotions, I was very tired very weak, but I was elated to see that bone marrow come in my room. The first thing I noticed was that my eyes were white. I had never seen my eyes white ever.” Spencer received a bone marrow transplant to treat sickle cell disease…
Dr. Carolyn Rowley’s Take: Healthy Living to Manage Sickle Cell
Read more: Dr. Carolyn Rowley’s Take: Healthy Living to Manage Sickle CellI know it may be hard for people to believe, but I’ve never taken pain medication ever. In dealing with sickle cell, lifestyle matters and through it I believe that I can heal myself. Living with sickle cell disease (hb SS), I do fairly well healthwise. I’ve been vegan since third grade and wrote a…
Victor Fadhili’s Take: Managing Sickle Cell Disease – A Young Adult Living in Kenya
Read more: Victor Fadhili’s Take: Managing Sickle Cell Disease – A Young Adult Living in KenyaMy parents traveled a far distance to get a diagnosis for my swollen hands and the pain in my joints. We didn’t have access to a test to determine my genetic status. When they found out I had sickle cell disease at 6 months, they were devastated because they were told no cure was available…
Recent Articles
- 3 Things Billy Garrett Jr does to have a better lifestyle with sickle cell
- Sunday James Shares His Experience with Receiving Blood Donations
- Ramon Reed Biography
- Sickle Cell 101 and 23andMe Collaborate to Expand Sickle Cell Trait Awareness Campaign
- Sickle Cell Disease and Mental Health