Sharif K. Tusuubira
A University of Kansas doctoral candidate in Quantitative genetics, Sharif has dedicated over 13 years to sickle cell advocacy in Uganda. He initiated the community screening program and led the Uganda Sickle Cell Rescue Foundation as its first Executive Director. A board member of the Uriel E. Owens Sickle Cell Disease Association, he’s recognized globally for his impact, including being named International Sickle Cell Advocate of the Year 2020.
Arafa Said
Focused on enhancing the wellbeing of Tanzanians with sickle cell and chronic diseases through social support, advocacy, and education. This advocate ensures patient access to health insurance and quality care, and actively contributes to fundraising and building global partnerships. Honored as International Sickle Cell Advocate of the Year 2017 and for outstanding Non-Communicable Disease advocacy in 2023 by Tanzania’s Ministry of Health.
Anne Welsh
Former Chairperson of Sickle Cell Society UK, Anne championed NHS policy development to improve sickle cell care quality. She has worked extensively to raise awareness, foster support access, and drive strategy with healthcare and industry leaders. Her memoir, “Painless – Living with Pain, Finding Joy,” shares her journey and contributions to global sickle cell care, complemented by her advocacy in other health campaigns, earning recognition from Downing Street.
Coretta Jenerette
A nurse researcher with over 30 years of experience in sickle cell care, Dr. Jenerette focuses on improving self-care management and health outcomes for patients. Honored as National Sickle Cell Advocate of the Year 2020 by Sickle Cell 101, she serves as Treasurer for the International Association of Sickle Cell Nurses and Professional Associates, contributing to the advancement of care practices.
Gina Glass
Founder of Nevada’s first sickle cell organization in 2018, community health worker Gina Glass partners with clinics to support pediatric SCD patients and their families. Through education, awareness, and community resource referrals, they promote health equity and best care practices. Their caregiving experience offers invaluable perspectives on navigating the challenges of SCD.