Curative 101: Curative Therapies for Sickle Cell Disease Educational Initiative
This educational initiative by Sickle Cell 101 aims to provide foundational information on curative options for sickle cell disease (SCD). By exploring the fundamentals of current and emerging curative therapies, we hope to empower our community to engage in informed decision-making.
Our goal is to encourage discovery and open dialogue around these potentially transformative treatments. We believe that knowledge is power – equipping patients, families and providers with a strong understanding of the science and medicine behind these options will lead to better outcomes and experiences.
While the path to a universal cure is still unfolding, our mission is to delve deep into this rapidly evolving landscape. We aim to deliver balanced, evidence-based education that enables our community to evaluate curative therapies with a discerning and empowered lens. Join us as we shed light on the promise of tomorrow’s treatments, while navigating the realities of SCD care today.
2023-2023 Curative 101 Educational Initiative
Initiative Key Topics
At Sickle Cell 101, we develop our educational programming around the topics that matter most to the sickle cell community. This year for Curative 101, we are focusing on the following key areas based on insights and feedback from patients, families, and providers:
- Defining “Cure”: We aim to level-set perceptions, expectations and facts surrounding curative therapies. What does it really mean to be “cured” of sickle cell disease.
- Curative Approaches: We will provide comprehensive information on the different types of current and emerging curative options, including key differences between them.
- Accessibility of Curative Options: We will address critical issues around access, including patient qualifications, geographic availability and more.
Our goal is to empower patients, families and providers to have informed discussions on whether these transformative therapies are right for their unique needs and circumstances. We thank the community for guiding our programming and helping us deliver the most meaningful education possible.
To effectively educate the community on key topics around curative therapies for sickle cell disease, our Curative 101 initiative for this year will include the following components:
Webinars: Informational webinars presenting the latest evidence-based research on curative approaches from leading medical experts.
Fact sheets: Downloadable and printable fact sheets summarizing different curative options, risks and benefits, and accessibility considerations.
Ask the Experts Live: Moderated online community forums for patients and families to ask questions and share experiences.
Landing page: A comprehensive section of our website with in-depth, unbiased information on curative therapies for sickle cell disease.
Social media: Social media and newsletter outreach supplying initiative updates.
Curative 101 Sponsors and Collaborators
All Hands on Deck: As part of our dedication to providing fair-balanced information on curative and potential curative treatments for sickle cell disease, we are grateful to work with the following sponsors and collaborators.
Our sincerest thanks to our 2023-2024 sponsors, including Editas Medicine, bluebird bio, Beam Therapeutics, and Be the Match. By working together, we can ensure our community receives comprehensive and accurate information on curative therapies.
Disclaimer: The information presented in this initiative was independently developed by our organization. It does not necessarily reflect the views or opinions of our sponsors and collaborators.
While we value the support of our partners, we retain full editorial control over the program content. Our educational materials are created based on the latest scientific evidence and best practices, not the commercial interests of sponsors.
We aim to provide fair, balanced information on all available treatment options. If you have any concerns about bias in the program content, please contact us directly. We welcome feedback to ensure the integrity of our educational mission.