Tag: sickle cell
3 Things Billy Garrett Jr does to have a better lifestyle with sickle cell
Written by Nnenna Kumenda Tip 1: Diet Now we know how hard it can be to change up your diet especially when you’re comfortable snacking and eating whatever you like, but sometimes change is good. We’re not saying have an athlete’s diet which is strict, we’re just saying what about putting that Pepsi down and…
Sunday James Shares His Experience with Receiving Blood Donations
Written by: Nnenna Kumenda Sunday James talks about how important donating blood is for the sickle cell community and how blood transfusions have been saving his life since he was two years old. To those living with sickle cell disease we know how hard it is to find blood donors, especially with those who develop…
Ramon Reed Biography
A native of Charlotte, North Carolina, Reed began acting at the age of five in community plays with Porch Productions, Inc and through his school and church. In 2015, his starring role as Donkey in a North Carolina Children’s Theater summer camp production of “Shrek Jr.” sparked a more serious desire and love for acting.…
Sickle Cell 101 and 23andMe Collaborate to Expand Sickle Cell Trait Awareness Campaign
Sickle Cell 101 and 23andMe Inc have joined forces to provide education and free resources to those unaware of their sickle cell trait status and are seeking to learn more. Launching to end Sickle Cell 101’s yearly Summer Sickle Cell Trait Awareness Campaign while continuing to celebrate Sickle Cell Awareness Month in September, the collaboration…
Sickle Cell Disease and Mental Health
Written by: Halimat Olaniyan Jemela Williams discusses how sickle cell affects her more than just physically. She discusses the impact of mental health as someone living with sickle cell disease, and how she manages its complications. To those living with sickle cell disease, we know that our pain is very real, despite whether the rest…
Being a Mom with Sickle Cell Disease
Written by: Halimat Olaniyan Versetta Brown discusses family planning, pregnancy, and parenting while living with sickle cell disease type SS. Versetta grew up terrified of the idea of having children because of what she knew about how pregnancy could negatively affect her sickle cell disease. Initially, it kept her from pursuing family planning any further.…
Honoring Wunmi Bakare for Women’s History Month
Written by: Halimat Olaniyan Wunmi Bakare is a superstar! She was diagnosed with sickle cell disease at 18 months old but didn’t know until years later when she was nearly a teenager. This is because her parents choose not to tell her of her diagnosis. They didn’t want her to live her life believing she…
Honoring Artist, Author and Advocate, Hertz Nazaire for Black History Month
Written by: Halimat Olaniyan There are a few things the sickle cell community at large agrees upon: 1. Our pain is real so believe us. 2. We cannot adequately describe all the ways in which we hurt. 3. A picture is worth 1000 words. Hertz Nazaire, Haitian-born artist, sickle cell warrior, and advocate – took…
Chinonso Aladi: Fashion Designer and Owner of Nonso Aladi
By: Halimat Olaniyan Chinonso Alasi was born and raised in Lagos, Nigeria. She moved to America 10 years ago and pursued a degree in fashion and design. She started making custom pieces and then decided to take on her company full-time in 2020. She’s been running her own high fashion brand full-time for the past…
Types of Nurses that Care for Sickle Cell Patients
Contributor: Dr. Keith Quirolo Bedside nurses have more contact with patients in the hospital than any other provider. They spend their entire day physically, emotionally, and technically caring for from two to six patients depending on the degree of care needed. Nurses can be the primary nurse provider through an entire hospitalization or on successive…
Fertility and Reproductive Health In Sickle Cell Disease Feat. Teonna Woolford
By: Halimat Olaniyan Watch interview of Teonna Woolford, Co-founder of SC RED >> This month we’re celebrating Women’s History Month by featuring sickle cell warrior, fierce advocate, and reproductive health trailblazer, Teonna Woolford. Teonna is also the Founder and Chief Executive Officer of SC RED, or the Sickle Cell Reproductive Health Education Directive. At…
Honoring Pat Corley, RN for Black History Month
This Black History Month SC101 is celebrating leaders within the sickle cell community who have become vital voices for the progression of sickle cell. This leads us to adult sickle cell nurse advocate Pat L. Corley, RN. When you think of Pat Corley, think of the nurse you’d want by your bedside in hospital. That’s…
2020 In Review
Highlighting Sickle Cell 101’s 2020 Activities 2020 has notably impacted us all in various ways, but such changes have also presented the sickle cell community with various opportunities for growth and positive impact to the people we serve at Sickle Cell 101 (SC101). We are excited to highlight some of our activities in 2020. …