#SickleCellTaughtMe to Fight

We’re celebrating Sickle Cell Awareness Month, a month dedicated to educating and raising awareness about the impact of sickle cell disease and sickle cell trait, and our collective commitment to reducing the burden of the disease.

History of Sickle Cell Awareness Month

The annual Sickle Cell Awareness month began in 1975, when the Sickle Cell Disease Association of America (then known as the National Association for Sickle Cell Disease) and its member organizations dedicated September to hosting events to raise awareness about sickle cell disease.

In 1983, Sickle Cell Awareness Month was recognized by the U.S. government when the Congressional Black Caucus introduced a resolution asking the president to issue a proclamation declaring September as ‘National Sickle Cell Anemia Awareness Month’.

Ways To Get Involved

We’re excited you want to join the celebration. Here are some ways you can get involved:

Alert Friends and Family

Use Sickle Cell 101’s filter and/or frame on Instagram and Facebook all month long. Search for them under “Sickle Cell Awareness Month”. Also, don’t forget to wear your sickle cell gear. Let em know it’s Sickle Cell Awareness Month!!

Educate & Raise Awareness

Repost and share your favorite Sickle Cell 101 posts to your pages. Share how you’re impacted by sickle cell disease. You can access our downloadables here.

Join the Community

Support challenges, attend or host events dedicated to Sickle Cell Awareness Month. Volunteer for your favorite sickle cell organization. In other words, show up and show out for the sickle cell community.

Host a Fundraiser or Donate

We’re advocating for sickle cell 365 days a year! Host a fundraiser on behalf of or donate to Sickle Cell 101 to support our mission of providing sickle cell education for all– forever!


We’re celebrating Sickle Cell Awareness Month with some giveaways!
Entering is simple:
  1. Completing this form
  2. Follow Sickle Cell 101 and Sickle Cell Plus.
  3. Reposting one of our educational graphics.
  4. Double your chances by sharing the giveaway link with a family member or friend. Referrals will be able to record your name on their entry.
Drawings will be held Tuesday, September 15 where five lucky winners will be selected and Wednesday, September 30, 2020, where an additional five lucky winners will be selected.

Listen to the SC 101 Podcast

Our Sickle Cell Awareness Month dedicated episode is discussing interesting sickle cell related topics.

Never miss another episode! Don’t forget to subscribe.


Upcoming Events

Virtual Entertainment Event
Virtual Entertainment Event

Save the Date for SickleCellCon Virtual on Friday, September 25, 2020. Visit here for more information.

Event closed.
Ask Dr. Q
Ask Dr. Q

This September, we’re hosting Ask Dr. Q Live on Friday, September 4th at 3PM ET / 12PM PT with a surprise guest. Don’t miss out! Tune in on Instagram Live and Facebook Live.

Event closed.

Education about Sickle Cell Awareness Month

Many of your noticeable characteristics, such as eye color, height and hair texture are inherited from your parents– such is the same for sickle cell disease and sickle cell trait.
A blood disorder that is characterized by red blood cells that transform from being round, smooth and flexible to sticky, fragile, elongated sickle shaped cells.
A simple blood test can determine whether you have sickle cell disease or sickle cell trait. A blood test called hemoglobin electrophoresis is a reliable test to learn your sickle cell genotype.

To learn more about sickle cell disease and sickle cell trait click here.

Meet Ruby Rose and her mom, Darleni
Meet the Warrior

Storytelling: Faces of Sickle Cell

Meet Ruby Rose and her mom, Darleni,

Darleni says, “Learning that my daughter Ruby has sickle cell disease was a complete shock to our family. I knew I had the trait, but her father did not know he had the trait until Ruby was born and diagnosed.⁠

When Ruby was 2 years she cried nonstop without sleeping or eating. Her body was stiff, and she couldn’t sit or stand. We had no idea what was happening as she was only 2 years old and couldn’t verbalize what was happening to her. We took her to the ER a total of 3 times before they found out what was happening– a sickle cell pain crisis. We quickly found it was a feature of sickle cell disease we could not control. Not being able to take the pain away is tough.⁠

As Ruby’s mother, I strive to make sure she feels and understood. I have type 1 diabetes, so I teach her the importance of taking medicine, through example, showing her how taking my medicine helps keep me well to encourage her to take hers.⁠

When it’s time to get out of the swimming pool, I get out with her and when we’re making sure she’s drinking her water, me, her father and siblings make sure we’re drinking as much as her, so she doesn’t feel different.⁠

Sickle cell has taught me resilience, faith, and what immeasurable faith looks like, but it has also taught me how to have empathy. We want to make sure Ruby feels loved and supported. We’re in solidarity with her.”

Meet Ruby Rose and her mom, Darleni
Meet the Warrior


You didn’t think we’d leave you empty handed? Check out these downloadables you can use to help educate and raise awareness for Sickle Cell Awareness Month.

Social Media Filters

Add our Sickle Cell Awareness Month filter to let your friends and family know that it is September is Sickle Cell Awareness Month.



Sickle cell education is a must. Download the following graphics to share on your social media profile. Help educate the world about sickle cell.

Awareness Graphics

A simple way to share that September is Sickle Cell Awareness Month. Download and share these fan favorites!

Our Partners


While it’s nice to have September, Sickle Cell 101 educates, advocates, and raises awareness all year long. Help support our cause– sickle cell education for all… Forever!