Strengthen #OurVoice
Because only Our Data can answer Our Questions. Join our bi-annual, anonymous 15-minute survey to help shape the future of sickle cell care and research worldwide.
#OurVoice Webinar for Patient Advocacy Organizations
Register for our webinar for global sickle cell patient advocacy organizations.
Learn how we’re transforming your input into the “Our Voice Report” to drive change with global policymakers.
Multiple dates available. Click below to register for this event!
About #OurVoice Global Survey
So many of our questions go unanswered because the sickle cell data we actually need, driven by our priorities, simply doesn’t exist yet.
Sickle Cell 101’s Our Voice initiative is a new bi-annual (every two years) survey to gather input from people living with sickle cell disease and those who care for someone living with sickle cell from any country in the world.
Since 2017, Sickle Cell 101 has conducted global community surveys as part of our efforts to understand the experiences, needs, and priorities of our sickle cell community. The output from our surveys has shaped our programs and helped us focus on the things that matter most to people impacted by sickle cell.
By regularly gathering input from our global sickle cell community, we can ensure that sickle cell care, research, support, and resources are shaped by your needs and opinions.
This initiative was designed to:
- Better capture our experiences, needs, and perspectives
- Identify emerging challenges, trends, and changes
- Help ensure that the insights gathered from the community can be transformed into solutions that make a difference for people impacted by sickle cell.
#OurVoice Global Survey Toolkit
We’ve developed an Our Voice Survey Toolkit with information and resources that you can use to help spread the word about Our Voice.
The more people that take the survey, the stronger OUR sickle cell community VOICE will be!
Thank You! #OurVoice Global Survey Sponsors
As part of our commitment to providing fair-balanced information through the #OurVoice initiative, we are grateful to work with a global network of sponsors and collaborators. Since 2017, Sickle Cell 101 has used global surveys to ensure that sickle cell care, research, and curative therapies are shaped directly by patient and caregiver needs.
Our sincerest thanks to our sponsors: Novo Nordisk, Pfizer, Agios, Vertex, and Beam for their support in transforming community input into real-world solutions and policy change.
Platinum Elite Sponsor
Platinum Sponsors
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