Care and Treatment 101: A Community Education Initiative for Sickle Cell Disease
The Care and Treatment 101 (CT101) Initiative by Sickle Cell 101 (SC101) provides patient-friendly education on sickle cell disease (SCD) treatment options, healthcare navigation, and pain management. Through expert-led discussions, fact sheets, podcasts, and digital content, we empower individuals to make informed decisions about their care.
Our goal is to equip patients, caregivers, and providers with clear, accessible information on managing SCD. By breaking down complex topics such as self-advocacy, treatment access, and pain management, we help individuals navigate their health with confidence. CT101 fosters open dialogue and community engagement through interactive Q&As, virtual meetups, and multi-platform educational campaigns.
As treatment options for SCD continue to evolve, our mission is to ensure that the community has the knowledge needed to evaluate and access these therapies. By delivering balanced, evidence-based education, we empower individuals to take charge of their health while addressing the realities of SCD care today.
Our Webinars
Stay tuned for our educational webinars focused on curative therapies for sickle cell disease.
Fact Sheets
Gene Therapy for Sickle Cell Disease
Stay tuned for Care and Treatment’s upcoming fact sheets.
2023-2024 Curative 101 Educational Initiative
Initiative Key Topics
At Sickle Cell 101, we develop our educational programming around the topics that matter most to the sickle cell community. This year for Care and Treatment 101 (CT101), we are focusing on the following key areas based on insights and feedback from patients, families, and providers:
- Navigating Healthcare – We will provide guidance on self-advocacy, building strong provider relationships, understanding patient rights, and accessing comprehensive care.
- Treatment Options – Our programming will cover disease-modifying therapies, emerging treatments, and alternative approaches to managing sickle cell disease
- Access to Care – We will address challenges related to healthcare access, insurance barriers, geographic disparities, and financial resources available for treatment
- Pain Management Strategies – From medication-based approaches to non-pharmaceutical methods, we will explore how individuals can manage pain effectively while considering long-term health.
- Mental and Emotional Well-Being – Recognizing the impact of SCD beyond the physical, we will provide education on coping strategies, mental health support, and navigating medical trauma.
Our goal is to empower patients, families, and providers to make informed decisions about sickle cell care and treatment. We thank the community for guiding our programming and helping us deliver the most meaningful education possible.
Initiative Components
To effectively educate the community on key topics around curative therapies for sickle cell disease, our Curative 101 initiative for this year will include the following components:
Webinars: Informational webinars presenting the latest evidence-based research on curative approaches from leading medical experts.
Fact sheets: Downloadable and printable fact sheets summarizing different curative options, risks and benefits, and accessibility considerations.
Ask the Experts Live: Moderated online community forums for patients and families to ask questions and share experiences.
Landing page: A comprehensive section of our website with in-depth, unbiased information on curative therapies for sickle cell disease.
Social media: Social media and newsletter outreach supplying initiative updates.
Curative 101 Sponsors and Collaborators
Collaborating for Impact: As part of our commitment to providing fair and balanced information on care and treatment options for sickle cell disease, we are grateful to work with the following sponsors and collaborators.
Sponsors
Disclaimer: The information presented in this initiative was independently developed by our organization. It does not necessarily represent the views or opinions of those who have provided funding (sponsors) or other content contributors (collaborators).
While we value the support of our sponsors and collaborators, we retain full editorial control over the program content. Our educational materials are created based on the latest scientific evidence and best practices, not the commercial interests of sponsors.
We aim to provide fair, balanced information on all available treatment options. If you have any concerns about bias in the program content, please contact us directly. We welcome feedback to ensure the integrity of our educational mission.