Strengthen #OurVoice.
Your voice matters! Join our bi-annual, 15-minute anonymous survey to help shape the future of sickle cell care and research worldwide.
#OurVoice Webinar for Patient Advocacy Organizations
Register for our webinar for patient advocacy organizations.
Learn how we transform your input into the “Our Voice Report” to drive change with global policymakers.
About #OurVoice Global Survey
Sickle Cell 101’s Our Voice initiative is a new bi-annual (every two years) survey to gather input from people living with sickle cell disease and those who care for someone living with sickle cell from any country in the world.
By regularly gathering input from our global sickle cell community, we can ensure that sickle cell care, research, support, and resources are shaped by your needs and opinions.
This initiative was designed to:
- Better capture our experiences, needs, and perspectives;
- identify emerging challenges, trends, and changes; and
- help ensure that the insights gathered from the community can be transformed into solutions that make a difference for people impacted by sickle cell.
Sponsors
All Hands on Deck: As part of our commitment to providing fair-balanced information through the #OurVoice initiative, we are grateful to work with a global network of sponsors and collaborators. Since 2017, Sickle Cell 101 has used global surveys to ensure that sickle cell care, research, and curative therapies are shaped directly by patient and caregiver needs. Our sincerest thanks to our sponsors Novo Nordisk, Pfizer, Agios, Vertex, and Beam for their support in transforming community input into real-world solutions and policy change.
Platinum Elite Sponsor
Platinum Sponsors
Gold Sponsor
