Help Through A Non-Profit Organization
It can be hard to understand the ins and outs of sickle cell traits and diseases, and can be difficult to find experienced sickle cell doctors who can help manage and treat sickle cell disease. Sickle Cell 101, a non-profit organization, is here to help. Our goal is to educate patients, caregivers, and medical professionals about this disease and the complications that can occur. We offer information sheets, question and answer sessions with trained medical doctors, and ongoing podcasts to help spread awareness. Non profits are an excellent resource for people to find fast, accurate, and affordable help. We can answer questions and help put you in contact with others in the sickle cell community.
Further, we help patients find a solidified patient advocacy group. On our website, we share several stories from others in the community and their success with advocacy. We offer many resources to help community members create their own patient advocacy group, or find a nearby group to help themselves, their caregivers, or their doctors learn more about sickle cell trait and sickle cell disease. Advocacy groups can help you identify your rights as a patient, understand the financial and billing aspects of the medical world, and can help spread awareness and information about the disease. It is important to remember that anyone can be a patient advocate! It can be a spouse, family member, or even a close friend.