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World Sickle Cell Day 2019

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It’s World Sickle Cell Day!

 

Sickle Cell 101 is excited to celebrate a day of sickle cell awareness and coming together to educate the world about sickle cell disease.

 

Stay tuned for facts that you can share with your friends and family on social media all day long.

 

If you’re on Facebook, please visit Sickle Cell 101’s page to use our filter to help raise awareness of World Sickle Cell Day to all of your family and friends.

 

You can also visit our website: http://sc101.org to download these graphics for World Sickle Cell Day.

 

#WorldSickleCellDay #WSCD #SickleCellAwareness

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This year we are celebrating the 10th anniversary of World Sickle Cell Day.

 

On December 22, 2008, the General Assembly of the United Nations (UN) created a resolution that recognized sickle cell disease as a global public health concern. This resolution urged the member countries and UN organizations to raise awareness at national and international levels on the 19th of June annually.

 

In 2009, the United Nations recognized sickle cell disease, “the world’s foremost and at times most lethal genetic diseases”, as a global health problem.

 

#WorldSickleCellDay #WSCD #SickleCellAwareness

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Sickle cell is a blood disorder that is passed down from parent(s) to children, meaning it is genetic, not contagious.

 

Normal red blood cells are round and able to move freely into blood vessels to provide oxygen to tissues and organs. When these red blood cells lose their oxygen in a person with #sicklecell they become fragile, sticky and sickle or crescent shaped making it difficult for them to move through small blood vessels. They can clog, slow or stop blood flow within vessels and lead to a multitude of complications.

 

Some of these complications include pain, infections, severe pain, stroke, acute chest syndrome and organ damage.

 

#WorldSickleCellDay #WSCD #SickleCellAwareness #SickleCell101

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The exact number of people affected by sickle cell globally is unknown due to the difficulty in some parts of the world to provide a newborn screening program. However, it is projected that 300,000 babies are born each year with sickle cell disease.

 

One study estimated a 30% increase of sickle cell disease births, primarily in #Nigeria and Democratic Republic of #Congo by 2050.

 

Source: Piel et al.

 

#WorldSickleCellDay #WSCD #SickleCellAwareness #SickleCell101

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In addition to those of black or African descent, sickle cell also affects Hispanics, South Asians, Caucasians from southern Europe and people from Middle Eastern countries.

 

Population migration, the Transatlantic slave trade along with many other factors have contributed to the worldwide occurrence of sickle cell disease and trait.

 

Sickle cell disease is thought to have started from the African continent due to the malaria protective factor of sickle cell trait.

 

#WorldSickleCellDay #WSCD #SickleCellAwareness #SickleCell101

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In the U.S. only 16% of Americans are aware of their sickle cell trait status. Globally, most people with sickle cell trait do not know their trait status due to the lack of a standardized universal testing approach for sickle cell trait.

 

Source: Sickle cell trait knowledge and health literacy in caregivers who receive in-person sickle cell trait education.

Creary S, et. al.


 

#WorldSickleCellDay #WSCD #SickleCellAwareness #SickleCell101

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When two parents, often unknowingly have sickle cell trait, there is a 25% chance of having a baby with sickle cell disease and a 50% chance of having a baby with sickle cell trait with each pregnancy.

 

It is important for parents to know their sickle cell status to help make informed decisions about pregnancy and childbirth.

 

#WorldSickleCellDay #WSCD #SickleCellAwareness