Blog & Press
Wanda William’s Take: My Experience with Taking Hydroxyurea for Sickle Cell Disease
Read more: Wanda William’s Take: My Experience with Taking Hydroxyurea for Sickle Cell DiseaseGrowing up I didn’t know I had sickle cell disease until I was 19, after the birth of my son. I grew up in a time where nobody knew what…
Men’s Health Spotlight Feat. Clayton Andrews
Read more: Men’s Health Spotlight Feat. Clayton AndrewsWe had the wonderful opportunity to meet and speak with Mr. Clayton Andrews, a sickle cell warrior with the HbSS genotype, a sickle cell disease advocate, and a proud girl…
Launch of Sickle Cell Studies On International Clinical Trials Day
Read more: Launch of Sickle Cell Studies On International Clinical Trials DayToday, May 20, 2021, is being observed around the world as Clinical Trials Day. We at Sickle Cell 101 join in today’s celebration and salute all those who have and…
Sickle Cell and Pulse Oximeter Accuracy
Read more: Sickle Cell and Pulse Oximeter AccuracySickle Cell and Pulse Oximeter Accuracy: What the new FDA warning means for individuals living with sickle cell disease By Dr. Stephen Boateng, Director of Research – Sickle Cell 101…
Celebrating International Women’s Day Feat. Arrey-Echi Agbor-Ndakaw
Read more: Celebrating International Women’s Day Feat. Arrey-Echi Agbor-NdakawMonday, March 8 marked International Women’s Day. Annually celebrated, the day commemorates the achievements of women around the world. This year’s theme, #ChoosetoChallenge, highlighted those who have confronted gender inequalities…
2020 In Review
Read more: 2020 In ReviewHighlighting Sickle Cell 101’s 2020 Activities 2020 has notably impacted us all in various ways, but such changes have also presented the sickle cell community with various opportunities for growth…
The Many Faces of Sickle Cell Pain
Read more: The Many Faces of Sickle Cell PainSickle cell pain syndromes include a triumvirate of acute, chronic and neuropathic pain that occur sequentially or simultaneously with age. Unlike other diseases associated with pain such as osteoarthritis, rheumatoid…
Transplant versus Current Standard of Care for Sickle Cell Disease
Read more: Transplant versus Current Standard of Care for Sickle Cell DiseaseThe decision to perform a progenitor cell transplant (bone marrow transplant) for sickle cell disease is based on the historical context that sickle cell disease is life-threatening, and historically (prior…
Vaso-occlusive pain episodes in sickle cell disease and menstruation: Is there a common connection?
Read more: Vaso-occlusive pain episodes in sickle cell disease and menstruation: Is there a common connection?I. Advancements in the Field of Sickle Cell Disease The field of sickle cell disease has undergone many medical advancements over the past 40 years, including early detection of the…
Hydroxyurea Management in Patients with Sickle Cell Anemia
Read more: Hydroxyurea Management in Patients with Sickle Cell AnemiaWhile sickle cell anemia was first reported by Dr. James Herrick more than 100 years ago1, there remains only one U.S. Food and Drug Administration (FDA)-approved drug for patients with…
Living Well with Sickle Cell 30 Day Challenge
Read more: Living Well with Sickle Cell 30 Day ChallengeStart the new year and decade off right! This challenge features healthy eating, self-care, gratitude, and time in the sun ☀️ DAY 1 – Take a selfie – Tag 3…
Curing My Sickle Cell Disease and Lupus
Read more: Curing My Sickle Cell Disease and LupusEn español abajo A Mother’s Testimony on Her Daughter’s Bone Marrow Transplant Listen to the podcast episode here. My name is Scherika and my daughter Rhiannon was diagnosed with sickle…
Sickle Cell and Depression
Read more: Sickle Cell and DepressionBy David Woods They say those who suffer from chronic illnesses such as sickle cell may be at risk for depression. According to the Sickle Cell Information Center (scinfo.org), “The…
No Regrets– My Bone Marrow Transplant Journey
Read more: No Regrets– My Bone Marrow Transplant JourneyInterview with Teonna Woolford How did you first learn about this BMT study that could potentially cure your SCD? In 2010, I was 18 and had overcome so many obstacles…
Advocating for My Daughter
Read more: Advocating for My DaughterBy Georgene Glass I am a 35-year-old mother of two: a 16-year-old (AA) and a 3-year-old with sickle cell disease (SS). Before Gia, my youngest child, was born, I didn’t…
How I Decided to Participate in A Transplant Study to Cure My Sickle Cell Disease
Read more: How I Decided to Participate in A Transplant Study to Cure My Sickle Cell DiseaseInterview with Charles Hough on His Experience in Participating in an NIH Transplant Study for Sickle Cell Disease With huge risks, how did you reason with yourself in participating in…
Advocating for My Sickle Cell Abroad
Read more: Advocating for My Sickle Cell AbroadWhen I was 30 years old, I traveled to Ghana to teach high school girls biology and activism skills for their burgeoning social justice movement. I happened to be in…
Surviving My Stroke
Read more: Surviving My StrokeAt a young age, I had a stroke. I had just flown back home to South Florida after graduating as a medical assistant. As soon as I landed, I experienced…
My Miracle Pregnancy
Read more: My Miracle PregnancyGrowing up I was told that I would never be able to have kids due to living with sickle cell disease. When I found out that I had an unexpected…
HBCU Sickle Cell College Tour
Read more: HBCU Sickle Cell College TourThe HBCU Sickle Cell College Tour is a series of events geared toward educating and raising awareness for sickle cell on HBCU campuses. This event is hosted by #BoldLipsForSickleCell and…
Recent Articles
- 3 Things Billy Garrett Jr does to have a better lifestyle with sickle cell
- Sunday James Shares His Experience with Receiving Blood Donations
- Ramon Reed Biography
- Sickle Cell 101 and 23andMe Collaborate to Expand Sickle Cell Trait Awareness Campaign
- Sickle Cell Disease and Mental Health