Day: October 14, 2020
The Many Faces of Sickle Cell Pain
Sickle cell pain syndromes include a triumvirate of acute, chronic and neuropathic pain that occur sequentially or simultaneously with age. Unlike other diseases associated with pain such as osteoarthritis, rheumatoid…
Transplant versus Current Standard of Care for Sickle Cell Disease
The decision to perform a progenitor cell transplant (bone marrow transplant) for sickle cell disease is based on the historical context that sickle cell disease is life-threatening, and historically (prior…
Vaso-occlusive pain episodes in sickle cell disease and menstruation: Is there a common connection?
I. Advancements in the Field of Sickle Cell Disease The field of sickle cell disease has undergone many medical advancements over the past 40 years, including early detection of the…
Hydroxyurea Management in Patients with Sickle Cell Anemia
While sickle cell anemia was first reported by Dr. James Herrick more than 100 years ago1, there remains only one U.S. Food and Drug Administration (FDA)-approved drug for patients with…
Living Well with Sickle Cell 30 Day Challenge
Start the new year and decade off right! This challenge features healthy eating, self-care, gratitude, and time in the sun ☀️ DAY 1 – Take a selfie – Tag 3…
Curing My Sickle Cell Disease and Lupus
En español abajo A Mother’s Testimony on Her Daughter’s Bone Marrow Transplant Listen to the podcast episode here. My name is Scherika and my daughter Rhiannon was diagnosed with sickle…
Sickle Cell and Depression
By David Woods They say those who suffer from chronic illnesses such as sickle cell may be at risk for depression. According to the Sickle Cell Information Center (scinfo.org), “The…
No Regrets– My Bone Marrow Transplant Journey
Interview with Teonna Woolford How did you first learn about this BMT study that could potentially cure your SCD? In 2010, I was 18 and had overcome so many obstacles…
Advocating for My Daughter
By Georgene Glass I am a 35-year-old mother of two: a 16-year-old (AA) and a 3-year-old with sickle cell disease (SS). Before Gia, my youngest child, was born, I didn’t…
How I Decided to Participate in A Transplant Study to Cure My Sickle Cell Disease
Interview with Charles Hough on His Experience in Participating in an NIH Transplant Study for Sickle Cell Disease With huge risks, how did you reason with yourself in participating in…
Advocating for My Sickle Cell Abroad
When I was 30 years old, I traveled to Ghana to teach high school girls biology and activism skills for their burgeoning social justice movement. I happened to be in…
Surviving My Stroke
At a young age, I had a stroke. I had just flown back home to South Florida after graduating as a medical assistant. As soon as I landed, I experienced…
My Miracle Pregnancy
Growing up I was told that I would never be able to have kids due to living with sickle cell disease. When I found out that I had an unexpected…
HBCU Sickle Cell College Tour
The HBCU Sickle Cell College Tour is a series of events geared toward educating and raising awareness for sickle cell on HBCU campuses. This event is hosted by #BoldLipsForSickleCell and…
SCAY Awards 2018
Congratulations to Shamonica Wiggins, National Advocate; Rabi Maidunama, International Advocate; Dr. Cheedy Jaja, Healthcare Advocate; and Amy Mason, Community Advocate from Sickle Cell 101.